We need your help to raise awareness of the hidden symptoms of MPNs
We are really excited to be working in collaboration with Novartis on a non-promotional MPN disease awareness/patient activation exhibition campaign.
The campaign, starting in autumn 2023, is aimed at reaching patients who are living with MPNs plus their caregivers (such as friends and family members) as well as the wider general public, healthcare professionals and Members of Parliament.
MPN symptoms are often ignored or underestimated and this campaign will use 10 creative art installations to help bring these challenging lifestyle issues to ‘life’. The campaign and larger than life art installations will appear around the country in hospital and public locations through the autumn.
We need your help to submit a wide variety of quotes from you as representatives of the MPN community about how you have been affected by some or all of the following documented 10 symptoms, you can send in as many quotes as you like:
- Fatigue
- Early satiety
- Abdominal pain
- Inactivity
- Concentration problems
- Night sweats
- Itching
- Bone pain
- Fever
- Weight loss
All contributions used in the campaign will be anonymised and we really appreciate your help to make this exciting campaign as successful as possible.
Please send your contributions and comments about these symptoms to info@mpnvoice.org.uk by 5 pm, Monday 14th August.
Thanks, and we look forward to sharing more information about the locations and ways you can help to raise awareness of the symptoms of MPNs
