Friday 16 January 2026, 5 pm – 6.30 pm (17:00 – 18:30 hrs) (GMT) REGISTRATION NOW OPEN! This MPN Voice ‘virtual’ forum will focus on Post ASH (American Society of Hematology) latest updates. The talks will be presented by: Professor Claire Harrison, Guy’s & St Thomas’ Hospital, Professor Bethan Psaila University of Oxford; Dr Alesia…
The videos of all sessions recorded at the MPN Voice Living with MPNs Day, held on Saturday 15 November 2025 in London, are now available to view on the MPN Voice YouTube channel.
As we approach the festive season, the MPN Voice Fundraising Team would like to extend our heartfelt gratitude and warmest Christmas wishes to all our incredible fundraisers, supporters, and community members. Reflecting on 2025 This year has been extraordinary — a true testament to compassion, determination, and collective spirit. Your efforts have not only raised…
Well here we are, nearly at the end of another very busy and successful year for MPN Voice. We have achieved such a lot! Forums – the in-person and virtual online forums continue to be a success. It has been a pleasure to see familiar faces and meet so many new MPN patients and their…
A vlogcast with Prof Claire Harrison, Guy’s & St Thomas’ Hospital, London and Nona Baker, Co-Chair MPN Voice. This vlogcast highlights key developments in the MPN (Myeloproliferative Neoplasms) field, shared by Professor Claire Harrison, focusing on the American Society of Hematology (ASH) conference and MPN Voice’s 2025 achievements. Key points include: ASH Conference Updates: Advances…
In Conversation with Tobe Aleksander, who updates Nona, one year on from their first conversation, about her participation in the Mithridate Study. This is part 2 of a series of 3 conversations that Tobe and Nona will have about Tobe’s experiences on the study – part 1 enrolling and starting the study; part 2 mid-way…
What matters most to you… and what might we be missing? At MPN Voice, we’re taking a fresh look at how we support people living with myeloproliferative neoplasms (MPNs) — and we need your insight to guide us. Whether you’ve leaned on our resources, joined an event, or simply followed along quietly, your experience matters.…
In this vlogcast, Dr Jack Waldman shares his talk/presentation – Psychological Impact of MPNs – which he presented at the Patients’ Forum held in Inverness on Wednesday 3 September 2025. In this talk, Dr Waldman discusses the psychological impacts of living with myeloproliferative neoplasms (MPN). He covers common emotions people experience after diagnosis, such as…
Dear MPN Voice community We are inviting people living with Polycythaemia Vera (PV), Essential Thrombocythaemia (ET), or Myelofibrosis (MF) who have received treatment with interferons (Pegasys or BESREMi) to take part in a short, anonymous survey. This important study aims to gather patient experiences during the recent international interferon shortages. The findings will help inform…
Pegylated Interferon Alpha – Supply & Commissioning Update We are very pleased to let you know that the recent shortage of Pegasys interferon has now been resolved, and hospitals are beginning to receive normal supplies again. While Pegasys was in short supply, some people were prescribed a different interferon called Besremi to make sure treatment…